Wednesday, June 10, 2009
today is quiet around the house. pierce is home with me. he has a summer pre-school tuesday and thursday from 9-2!! He loves it so much, growing up wayyy to quick for us. We want him to stay this way forever, for many reasons as you all can imagine. The family is going to Lake Hamilton tomorrow until sunday, we are ready for some r&r! I have been relentlessly studying to retake the ACT again since highschool, i am planning to go to school next fall of 2010 to be a scrub technician. Being involved asisting in the OR and emergancy is in my blood i think. having a medical background previously before pierce will only help my chances i hope! Blake and i are working out in the evenings to P90X! look it up online if you don't know. It has been incredible and incredibly hard. Amazing results after just few weeks. i encourage anyone to do it if they want to tone up and loose some. hope all is well with everyone..to my dear friend catherine, reuben..know that i love you both more than you will ever know. have a great day everyone. talk soon
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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org
1 comment:
P90X is sitting in a package on our kitchen counter... and now I am encouraged by you to open it tomorrow with my husband :-).
Thanks!
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