Friday, June 19, 2009

Our Rock Star... ...

Found these pictures from a few weeks ago, honestly can't believe how big Pierce is getting these days. Not that we are partial but he has to be the cutest kid ever and steals our hearts more everyday (at the same time we wonder what would Lucas be doing now... ...)

In other news, we ran into Jeff Matthews and his family at Sam's today (he is the morning show DJ that interviewed Blake) Got to catch up again real quick and he told us about an e-mail he got from a listener; a dad that had lost a son three years ago and told him how much it meant to him to hear Blake on the radio and to share the things that he did.



Pierce with cousin Gracelyn on the drums


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1 comment:

Pegsy said...

Those are great pictures! Such a little showman! Our son, Sky (5), loves to rock out with our Wii guitar too - I think our little guys would get along great!

June 23, 2009 at 4:48 PM

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org