Wednesday, September 29, 2010

Happy Birthday Pierce!!

Happy birthday to my first born young man now 5 years old today! So proud of this boy, he is a rare jewel to our family..we have given him gifts throughout the day, at school we threw a little party, it was memorable! But i think that tonight when we were winding down for bed, getting to our usual routine...of pierce brushing teeth, potty before bed, reading a story and tucking him in to pray..tonight i stayed by his bed just laying over him and rubbing his face; he turns over and says, "moma, i need you to rock me". So we are wrapped up with his music on, he ask me to sing "rock a by baby", i got through it twice and he was out in my arms..his body became limp you know and very heavy, at that moment it allowed me to remember how it felt to hold our lucas afterward when he passed, we had given him a precious bath, i wrapped him up and held him and just wept, i remember how heavy his body started tonight as i looked at pierce and the similarities b/t the both of them..i just thanked God for this level of PUrE Joy Pierce brings our lives, the healing he carries with him..i felt so covered by love and blessed to be his mother..
As this weekend unfolds, we will live and learn and bleed and break for our loss in just 2 short years! But the Grace is poured out in abundance over us and for that i am thankful for this journey..

Saturday, September 25, 2010

When Your Hands are Tied

This Week has brought the family back to a place of understanding God in his way of doing things; if there is anything this family or anyone else who has had loss, grief, or lived through life and death situations has learned, it is that when God is steering your life, and His will is being Let Go and Follow!
If you have ever been left with nothing, feeling washed out and unusable...when you least expect it, His Grace can pour over you and bring resolution!
God does take care of His OWN!
The Only thing or person that ties your hands is soon as we voice out what we are going through, say to the Lord "I am ready to let Go", His Mercy takes place over fear, and understanding only Jesus can give begins to lead the way!

Saturday, September 18, 2010

Blake, Pierce, and me are embarking on a great thing! Adoption!!
We are overwhelmed with the possibilities of what is coming next!

Friday, September 10, 2010

Pierce's Vowel Song

Pictures from our trip to Chicago (6-20-10)

Here we go...
Keith Urban at Soldier Field

Chicago Kids Museum:

Cubs Game:

Streets of Downtown:

Navy Pier:

Shedd Aquarium

Tuesday, September 7, 2010

Back to Blog Time... ...

Busy Summer! Mom is doing better and is finally back at home now! Optimizing her medications have done wonders! We have been to Chicago, then just got back from camping, Pierce man started school Pre-k, i can't believe it and he loves it!!!
I want to let everyone know that Blake and I have finally started pursuing adoption plans!! We are trusting God around every turn and it is quite an adventure!! We covet your prayers through this amazing new journey! We will keep you posted on things and try to get some pictures and videos up soon.

Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit