Monday, March 26, 2012







2012~ Is quickly moving!! I miss not being able to talk and catch up through blogging like we used to. The Weindorf family is doing great and on the go! Bryce at one year, Pierce is 6 and in the top of his class in Kindergarten, we are very proud of our big boy. Working from home lately is becoming a challenge with little Bryce, he is crawling everywhere and fixing to walk anyday now. He is so amazingly smart and has such a contagious personality, he can say Dad, momma, bubba, bye bye, and Hi clearly and so eager to learn more. Pierce and Bryce have a very close relationship and love to play and talk. We love you all family and friends!! Constantly thinking of you and so thankful!!!

Wednesday, December 14, 2011

Happy Holidays!!!!!!

Christmas is in the air!!!!
This time of year it is so much easier to have the warm fuzzes all over...the chilly weather, breaking out the warm coats, hats and gloves; snuggle up by a fire and just listen to the crackle and pop sounds with family and friends we love so much..True it is one of the busiest times of the year for us all, but finding the time to maybe reach out to family we haven't been close to in years, even neighbors or coworkers~we all crave a little kindness this time of year.
For the Weindorf household, we are so excited for our newest son Bryce to have his first Christmas!!! He is 9 months old now and is so smart and strong. Pierce is an amazing big brother and ready to teach Bryce the ropes...
I really don't know where to begin with this year and changes God has brought us. I am so thankful that God only allows us to see parts of the tapestry of life b/c there is no way we could take it all in at once...I am home with Bryce and working part-time here as well, pierce now in kindergarten and doing so well, Blake engineering still and we feel the turning of the tide in our family has been taking place all year long!
We hope with all our heart that all of you have a magical and peaceful Christmas this year!!! Know that as i am writing to update everyone, you are in our thoughts and prayers and send you love and kindness your way!
As i am ending this post for the evening i would like to speak to our CHARGE families around the world that are still keeping in touch. Just this Monday Blake and I started to feel the loss in our heart for Lucas, it is so strange that it sneaks up on you when you least expect it..something as simple as a silly hallmark movie, a song on the radio driving to work, a simple look that Bryce will give you and it reopens those pieces of our heart that we keep hidden and protected..i took a long calming cry as well as calling Blake and realizing that he did to on the same day at different time, but God knew we needed that release it seems..it never gets easier to me, and i am not even sure that time heals all wounds....i believe the wound becomes a part of you..and changes you forever; it is a reservoir within to keep you going on those dry days, i can reach down and find strength to move myself from that lonely place and get to a peace again...
Lucas, my song and heartbeat live on because of you..you were and are the living testimony of unconditional love and determination to conquer everything impossible in this life! I love that i can close my eyes when there is a need for a reality check, i find you in that place and instead of not breathing like before, you actually give me breath and purpose for living and moving on!!! You are remembered and held this Christmas my darling.....see you soon
Love,
Mommy,Daddy,Pierce and Bryce
December~2011












Monday, October 24, 2011

Life is Busy,

Hope this update finds everyone well and in good spirits! This year is fast approaching the end and we can not believe it! Since March and birth of our baby Bryce, our lives have been onthe fast forward button...Bryce is the best baby ever! It is like our pediatrician Dr. Weed said during his 6 month check up~He thinks God knew we needed a him, and gave us such a healthy and happy little man. Pierce is brilliant and doing wonderful in kindergarten and parent teacher conference went so well..he is growing up so fast as i am sure everyone else's kiddos are. Bryce is 7 months and is cutting his 3rd tooth, that is pretty fast to me. He is strong minded and has a beautiful spirit. We are exspecting him to crawl anyday now as well.
Blake and i are doing great and really our lives have never been so closely knit and happy...through all things in the last four years of life..i can finally say that little pieces of my soul are starting to come back if that makes since?. Areas in my heart that i thought could never be touched or uncovered again have seen some light and fresh hope in which were many dark and lonely places. There is an incredible bond between pierce and bryce and it is very neat to just watch how they communicate. Pierce is totally consumed with being the big brother. Anytime Bryce is upset he is racing to his rescue as though he knows what he needs. Bryce adores listening to Pierce, he finds him very funny and trusting.
As the Holidays are fast coming i can truly say we are so very excited and blessed to experience family and traditions we both have had with Bryce and just watch God continue to gel us together.. Hope you enjoy this update with pictures that are so cute and a video that is priceless!!

Pictures and Funny Video





















Never thought sweeping the floor could be so funny!!!!

video

Monday, June 27, 2011









HE IS SUCH A HANDSOME LIL MAN!!!!
PIERCE AND BEN HAD A BLAST THE ENTIRE TRIP!!











8TH TIME SEEING KEITH URBAN, AND WAS INCREDIBLE!!!!!




2011 KEITH URBAN "GET CLOSER"

Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org