Friday, November 21, 2008

Lucas's Name in the Sand

Special thanks to the namesinthesand blog for the beautiful tribute!!

"Real" by MK / Where We Are

This is Blake, thought I would share this song we recorded while
Lucas was still in his mom's womb. MK got the lyrics to this song
in about 5 minutes flat and we recorded a while back after the
album studio work was finished for the Revealing's CD.

It's a rough recording not professional but I still love it and hope
you like it:

Also, MK shared this song with me last night as to where we are right now in the beginning of moving on with what sometimes feels like a different life for us now with out our baby with us anymore... ...

Monday, November 10, 2008

Congratulations to Catherine & Jason / Other thoughts

Congratulations to Catherine & Jason on the birth of their new son Callum Andreas Lucas; words can't express the honor of having them keep Lucas's namesake with their brand new baby boy; all we can say is thanks and though we've not meet yet we will always be together...

as life moves on we are missing our baby so much; Had good weekend, a short trip to see Blake's dad, step-mom & family in SE Arkansas with Pierce. Worship was unbelievable Sunday and we know the God is great!!

Some of our emotions are captured within songs in the following awesome videos:

Sunday, November 2, 2008

Lucas's Shadow Boxes

Finally finished them:


At BNC we call it Hallowin, going out to pass out salvation / vision DVD's to the community during our trick-or-treating... ....

So here we are the Cowboys and their Indian Princess

Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit