Monday, April 4, 2011
Settling In!!
So we have made it home safe and sound from Texas! First we want to say thank you to everyone who held our hand through this adoption and gave your love, support, and prayers. Blake and i in the next coming days, will try to begin telling you this amazing journey we have had. Bryce is now two weeks and 3days! He is weighing in now at 8lbs. and 20inches long. He has received and perfect first visit and our pediatrician's office as well! Bryce is also sleeping around 5-6 hours at a time in the overnight hours..just a perfect baby and we are so honored to be his parents!! Pierce has taken his big brother role in full swing. If Bryce is remotely upset, here he comes to his rescue whether it be putting a passy in his mouth, or coaching mommy on how to help calm him down. So precious!! We want everyone to tune in starting tomorrow on our blogging, because our story will begin for you all! For today, please take time and enjoy looking at our family and Mr. Bryce Samuel Weindorf!
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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org
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