Thursday, April 7, 2011

Making a New Friend

After the initicial conversation b/t Misty and me, we began talking daily through texting just learning about one another..Something i will never forget about the first of things is Misty had known of our tragedy theses last two years b/c i expressed it in one of our first emails..i started directing her to our blog and she said to me that she didnt want to go to our blog untill she met us face to face..she didnt want to have a preset notion or opinion of it all. i found this answer so amazingly respectful. So Misty invited us to come to her first OB visit arond 8 weeks in Round Rock, TX. So we packed up for that weekend and headed down. I remember the closer we got to pick Misty up from her house, the more nervous i got! The anticipation was of the charts!! We picked her up and headed to the appointment..Misty is so smart, i remember being in the front seat turned around listening to her and thinking, i have never been so intimidated in my life. She remembers anything she learns, or reads and is well adversed on the world and the problems in it..It made for wonderful conversations the whole time. So we got there and she invited me to go back with her to see the doctor. and the visit went just perfect. After that, we spent more time the afternoon eating and talking again; and headed home to Arkansas. As soon as we dropped Misty off at her house and left for home, i dont think blake or i said one word for miles it seemed. Then i look over at Blake and he was so speechless and moved, i was crying my eyes out..Misty had become such a part of our hearts already, she let us in so easily and love was already being done in our hearts for this precious woman. Something i want to say here before i close for today is this: All of us have searched for signs, for God to show us the right way, or confirmation from friends and family that you are making the right choice. Well i will tell you that in the worlds eyes, this path with Misty we were on was stacked against us b/c it was unusual to bond this well and easily with the birthmom, to have no one navigate our conversations and just trust one another with our hearts...but it was Gods plan from the moment Misty and I were born, to introduce us and let us walk this together. We DID pray for a sign, and all the rest to make sure this was right, you know Misty and our family had already been hurt in the worst ways, we had lost our son..and misty had lost Evan her 6 year old son temporarily and was fighting to get him back, so all of us were "raw" and "vulnerable" God knew we needed one another, and i believe that more everyday we still breathe! Cant wait to tell you whats next......untill then

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit