Tuesday, April 5, 2011

A New Road

Day 1~ How many of us have experienced first hand, known someone, or simply read about stories that change you forever? Stories as seen on "extreme homemakeover" and such. Once you have, it connects us all in a profound way even if it is through tragedy or comedy; life and death. It also seems to me that you are merely exsisting in this universe, going through the motions, family, work, school, home etc., then we all get up the next day to do it all over again right? This world is so unpredictable whether you believe we derived from exsistance of things before us, or we believe that a sovereign God formed us from the beginning of time which is called sovereignty. Either way we are all born, we grow up, find meaning and purpose and start to experience the throws of LIFE! Well hopefully we have all walked through and had someone else's "random" acts of Kindness in our lives because there is one thing that all human beings can agree on and it is the definition and feeling of the word "HOPE"! Today on Day 1~ this is how our New Road begins, with hope. THIS THING CALLED TWITTER! If you know about twitter, then we all follow someone else and keep up with current events and such, even a great way to meet knew people. As life would have it for us, a friend of ours follows a certain ministry out of Texas thru twitter; one day there was a tweet sent out talking of a young woman who was early pregnant and that we all need to pray she wont abort this baby but she will consider adoption. So our friend emailed this ministry and spoke to them of blake and i and what we had been through. With in a 24-36 hour window..our history got to our birthmom, and she contacted us through email. She chose us and we were so honored! tomorrow i will tell you how this beautiful friendship with our birthmom Misty begins.

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org