This Week has brought the family back to a place of understanding God in his way of doing things; if there is anything this family or anyone else who has had loss, grief, or lived through life and death situations has learned, it is that when God is steering your life, and His will is being performed..you Let Go and Follow!
If you have ever been left with nothing, feeling washed out and unusable...when you least expect it, His Grace can pour over you and bring resolution!
God does take care of His OWN!
The Only thing or person that ties your hands is YOU..as soon as we voice out what we are going through, say to the Lord "I am ready to let Go", His Mercy takes place over fear, and understanding only Jesus can give begins to lead the way!
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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org
3 comments:
Beautiful words MK
Beauiful!! I will keep you all in my thoughts and prayers and hope everything go well.
Love,
Crystal and Eva
I cannot imagine how hard this week approaching will be for you, the gauntlet of emotions. I will prayer for you all for God's strength and grace. With love Catherine
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