Wow,
Busy Summer! Mom is doing better and is finally back at home now! Optimizing her medications have done wonders! We have been to Chicago, then just got back from camping, Pierce man started school Pre-k, i can't believe it and he loves it!!!
I want to let everyone know that Blake and I have finally started pursuing adoption plans!! We are trusting God around every turn and it is quite an adventure!! We covet your prayers through this amazing new journey! We will keep you posted on things and try to get some pictures and videos up soon.
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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org
1 comment:
So great to see you on your blog again and to hear about your up and coming adoption! We miss you all very much, and Logan always talks about Pierce! Everytime we see the letter "P," Logan says Pierce's name! Can't wait to hear more!
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