Just wanted to post some detail on what happened to our precious "blue eyes" Lucas on the off chance that we would forget any details later or that someone could be helped by what happened to him. Before I forget to mention, wasn't Lucas service perfect; we thought it couldn't have been better. Thanks to all who came and supported us with overwelming love and kindness.
Lucas's Pulmonary Hypertension got out of control very very quickly the last month and in the cath lab last Thursday the cardiologist said it was the highest pressure he had recorded in a PH case (and he does 200 per year for the last 25 years). The advanced medicine they were trying, Prostacyclin, actually raised his PH slightly and he was already maxed out on sildenafil and inhaled Nitric Oxide. His lungs had permanent irreversible damage and after he came out of the cath lab we were informed he only had days at best. No one thought it would be that day, but Lucas has always done things his own way. So he waited till we knew, and took away any difficult decision we would have had to make and went home after we laid with him a while. Since he didn't respond to the advanced medicine he would there was nothing else that could have been done even if they would have found this much sooner. He had some great days in the PICU and only wanted to play the whole time, even to the end, he played so much that he even started sleeping less, like he knew. He touched so many people while he was here and we'll miss him so very and painfully much!!
We (Blake, MK, & Pierce) have slipped away to breath and grieve and get to know each other again for several days. We are in northern Arkansas in a cabin near the buffalo national river. Things are very peaceful and healing here... ... (special thanks to Fred and Tammy for allowing us to stay and rest here in their home away from home) We feel like we haven't seen each other's faces in so long, especially Pierce's. He is doing well though. We got here on Sunday and plan to stay for a bit. Yesterday we walked by the river and threw rocks in with Pierce, last night we took in a drive-in movie together(yes, they still have a few of those, this one was the kenda in Marshall, AR)and it was a moment to remember, stars were out like never before and we saw a shooting star during the movie. Today we went shopping a bit in Branson, MO and when we returned the rain on the front porch was so peaceful and soothing. Here is a bit of our get away so far... .... we also hope to go canoeing and find other relaxing things to do in this place hidden from time and almost the rest of the outside world (we do have internet from the Gilbert Cafe across the street though), we'll see what we can get into. The hard part is an empty seat in the car and at the dinner table and missing our baby boy so much.