Thursday, October 2, 2008

He is finally home

Lucas grew his angel wings today and went home. He is truly a miracle and we were all fortunate to know him and have him near for the brief time he was here with us. He is whole and healed now with no more tears and no more pain. He showed us what it was to live and laugh through it all. Though this hurts so unbearably bad now and how we wish he would have grown and stayed much longer; our son is resting in such sweet peace now and patty caking with the angels forever... ...

Lucas Fillmore Weindorf
born to us 5-10-07
went home 10-02-08
Viewing Friday, 10-3-08, 6pm -8pm at Griffen Leggett 10200 Hwy 5, Alexander, AR, 72002
Service Saturday, 10-4-08, 11:30 am Brand New Church 2203 N Reynolds Rd, Bryant, AR 72019 with Graveside service to follow at Forest Hills Cemetery 10200 Hwy 5, Alexander, AR, 72002
The funeral service will also be web cast here on the blog so if you can't make it check back tomorrow at 11:30 am



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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org