Monday, March 26, 2012

2012~ Is quickly moving!! I miss not being able to talk and catch up through blogging like we used to. The Weindorf family is doing great and on the go! Bryce at one year, Pierce is 6 and in the top of his class in Kindergarten, we are very proud of our big boy. Working from home lately is becoming a challenge with little Bryce, he is crawling everywhere and fixing to walk anyday now. He is so amazingly smart and has such a contagious personality, he can say Dad, momma, bubba, bye bye, and Hi clearly and so eager to learn more. Pierce and Bryce have a very close relationship and love to play and talk. We love you all family and friends!! Constantly thinking of you and so thankful!!!

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit