Monday, May 10, 2010

HAPPY BIRTHDAY LUCAS, We sure miss you!!


Missing our baby boy so much today!! Moment by moment thinking of his warm smile and his contagious laughs. He would have been three today... ...

Building 429 - Always Lyrics

I was standing in the pour raining
One dark November night
Fighting off the bitter cold
When she caught my eye
Her face was torn and her eyes were filled
And then to my surprise
She pulled out a photograph
And my heart just stopped inside
She said He would have been three today
I miss his smile, I miss his face
What was I supposed to say

But I believe always always
Our Savior never fails
Even when all hope is gone
God knows our pain and His promise remains
He will be with you always

5 comments:

Mandi said...

happy birthday lukey....we celebrate your life today. shine on blue eyes!

Kurby Family said...

Happy Birthday Lucas. I know you are deeply missed.

Crystal M. said...

Happy Birthday Lucas!!! We loved you and miss reading your wonderful updates. I think of you offen.
Love,
Crystal and Eva

Catherine said...

Hello dear friends and happy happy birthday Lucas. Ever in my thoughts and heart as your mama was on Mother's Day

amy and mighty max said...

Love and peace sent your way...missing Lucas along with all of you.


Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org