Sunday, January 10, 2010

For Lucas (and Joel) - by Catherine Lacey Dodd

Looking back over the years wilst restoring the previous posts that were accidently deleted last year we found this wonderful poem written for Lucas by Catherine Lacey Dodd that was posted to Reuben's blog shortly after Lucas passed. We never reposted it here but it is a fabulous piece of poetry one that has truely touched us again.

This time reading gave us such a warm and hopeful feeling in our hearts remembering our son in heaven and the lives he touched on earth.

Thanks again so much Catherine!!!!!!

For Lucas - by Catherine Lacey Dodd

When Angel Lucas took his first long flight
To God in heaven bathed in wondrous light
He looketh down to see his brother Pierce
And mom and dad so sadly bathed in tears

He asked Dear Lord “Why did I have to go
Just as my life was blossoming, all aglow?”
His tiny wings then mustered up the strength
To meet his Guardian Angel, Heaven sent

And God embraced him in his loving arms
All saints and heavenly creatures with their charms
With God he understands what we can not
It all makes sense, no need for Why and What?

A special place in Heaven has been saved
A place where God has gathered those he made
You’re dancing now with Angels, children too,
With patience they have waited long for you

That heavenly place more beautiful than we can say
A place for love and laughter, ecstasy
So Lucas asks you not to grieve for him
For he has done Lord’s work with your dear kin

Upon this Earth he touched and he invited
A plethora of lives across the world united
He playeth now in wonderment with God
Stands by his maker’s comfort, staff and rod

You ached for him to grow to be a man
Yet he fulfilled what God intended, his great plan
A life full of such intense family love
It overwhelms, it breaks my heart to think of

Go rest in peace our dear sweet Lucas boy
Your life has touched so many lives with joy
The peace I found within me when I saw
The love and excitement of your darling boy

Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit