Thursday, October 1, 2009

In Memory

This week has been difficult; we are breathless at many times again remembering exactly where we were at this time one year ago. We are going to get away again this weekend, leaving this afternoon, to be together just Pierce, Blake and I. Thank you for your thoughts and prayers and memories of Lucas.

In Loving Memory of Lucas. You left us all to soon last year (10/2/08) but you will never be forgotten.

Thanks for watching over us Blue Eyes!!

18 comments:

Catherine said...

Thinking of you so much this week and unable to fathom what it is that you have been through, only knowing that you've been in my heart, thoughts and prayers. Remembering dear sweet Lucas. God bless you all. That is a lovely photo which I don't feel I've seen before. Catherine and the boys x

Kristi said...

Thinking of you and praying for you as time crosses this difficult anniversary.
Your beautiful, blue-eyed boy will never be forgotten... nor will the lessons you've taught so many as you've loved him, mourned him, remembered him and honored him.
Fondly,
Kristi

Candi said...

Rob and I are thinking about you all and missing sweet Lucas right along with you.

Leslie, Arlin and Katie Kauffman said...

Remembering your sweet angel Lucas. Your family will be in our prayers this weekend.

The Kauffmans

Kurby Family said...

Thinking of you, praying for you, and leaning on you. We lost our son in March and have been grieving with you and thinking of your whole family. It makes me smile to think Joshua has found Lucas to show him around. Your son will never be forgotten, and loved every day. Hugs and prayers to you during this especially difficult day.
The Kurby Family

Tania said...

Thank you for sharing your family life and giving others hope for a new day. We love you guys so much.
Tell Pierce he has to come see us when he gets home. See ya'll soon.
xoxoxoxoxoxoxoxoxoxoxoxoxoxox

Catherine said...

There's a message thread on the yahoo listserv for you dear friends:

http://health.groups.yahoo.com/group/CHARGE/message/118124

Catherine said...

Remembering Lucas' family and keeping them in our thoughts and prayers!!!!!

Fondly,
Tia and family

Catherine said...

Please pass on my thoughts to the Weindorf¹s..hard to believe a year has
passed.
pam

Catherine said...

thanks for reminder. lucas and family in our thoughts today...

chrystal & family

Lisa W. said...

Thinking of you this week and remembering your sweet, adorable boy...

I love that photo of him.

hannah m said...

Thinking of your sweet family, praying for peace and the comfort of happy memories of Blue-Eyed Lucas, bringer of light...with love.

Nelson Family said...

Remembering Lucas's beautiful life and praying for continued courage and strength for your family. We also have a little boy with CHARGE, Burke, and are with you in prayer and spirit today.

Christy said...

I admire your courage and faith. I lost my nephew Charger in March and miss him ever so much. Keep strong.

Crystal M. said...

My mom and I talk about Lucas a lot and remember all we read about him. My mom was able to watch his beautiful service on line and she is so greatful you were all able to do that for all who could not be there in person.
God bless and i hope you are all able to enjoy your weekend away.
Hugs,
crystal and Eva

ellen charge said...

hugs to u and the fam

Anna Bowman said...

precious photo of him... loving and praying for you

amy and mighty max said...

thinking of you...and sending prayers of peace and comfort.

amy and maxwell


Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org