Tuesday, March 3, 2009

"Carried to the Table"

Carried to the Table from Leeland on Vimeo.

Please pause the playlist at the bottom to watch the video... ...This is a moving song, I can't help but feel that Lucas was "carried to the table" and I know that he is with our Lord. We were shattered by our fall of losing him but God continues to love and heal our family as we move on through this life... ... Honestly I am jealous of Lucas when I think about the peace and shear joy that he has now seeing the face of Jesus and playing with the angels.As for Blake, Pierce, and I we are doing well. Pierce started a new preschool last month and is adjusting well there. He seems to really enjoy school and is going up so fast. Here are some recent pictures.

Pierce in a tree at Blake's grandmothers house that Blake climbed when he was a boy

Pierce & his Pops (my dad) greeting on a Sunday morning

Tricycle race at Pierce's preschool

he is so funny... ...

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org