Life is Busy,
Hope this update finds everyone well and in good spirits! This year is fast approaching the end and we can not believe it! Since March and birth of our baby Bryce, our lives have been onthe fast forward button...Bryce is the best baby ever! It is like our pediatrician Dr. Weed said during his 6 month check up~He thinks God knew we needed a him, and gave us such a healthy and happy little man. Pierce is brilliant and doing wonderful in kindergarten and parent teacher conference went so well..he is growing up so fast as i am sure everyone else's kiddos are. Bryce is 7 months and is cutting his 3rd tooth, that is pretty fast to me. He is strong minded and has a beautiful spirit. We are exspecting him to crawl anyday now as well.
Blake and i are doing great and really our lives have never been so closely knit and happy...through all things in the last four years of life..i can finally say that little pieces of my soul are starting to come back if that makes since?. Areas in my heart that i thought could never be touched or uncovered again have seen some light and fresh hope in which were many dark and lonely places. There is an incredible bond between pierce and bryce and it is very neat to just watch how they communicate. Pierce is totally consumed with being the big brother. Anytime Bryce is upset he is racing to his rescue as though he knows what he needs. Bryce adores listening to Pierce, he finds him very funny and trusting.
As the Holidays are fast coming i can truly say we are so very excited and blessed to experience family and traditions we both have had with Bryce and just watch God continue to gel us together.. Hope you enjoy this update with pictures that are so cute and a video that is priceless!!
Monday, October 24, 2011
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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org