This Past Friday morning in Round Rock, Tx, we met up with our birthmom Misty and took her to her appointment and ultrasound. We had an awesome time together, and we are just so honored Misty has chosen our family to have this precious gift!
We found out that we are having a bouncing baby BOY!!!!!
I tried my very best to keep my emotions at bay untill blake and i were alone...I think for Blake and myself, we are always having at heart Misty's road she is walking and her feelings through this journey..I can tell you however that when we finally anounced Boy...that inside from head to toe a soothing warm feeling went through my body, it was a feeling of peace and contentment that i had not had in a long time.
On the way home we already began to think of names and we are still looking for one...At the moment it is Jace Samuel Weindorf! The name Jace means "Healing"! so appropiate for our family. Continue to ask for you all to hold us up in prayer these next few months for our lives and Misty. God is so very gracious and sovereign! Our family loves you all very much and talk to you soon.
Sunday, November 21, 2010
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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org