Friday, April 8, 2011

A PRECIOUS GIFT

Misty, Blake and me started talking somewhere mid` September of 2010..Like i was telling you earlier, she and i would basically talk on a daily basis, mostly through text. Right off the bat Misty and i were already reading each other very well, even thru the simplest of phrases we could pick up on hints, fears, dislikes really anything. Anyone who has gone thru adoption will tell you that for two mothers to have such a connection with honesty and not hide any fears was very unique...Misty and i had no one being the mediator b/t our conversations, and while i am talking on this, i want you to know that this is exactly the way Misty wanted it..i had many reservations doing it this way at first and she knew that. Misty would always pick up on my doubts about her changing her mind and just flat out call me up on it..then simply tell me to breathe and relax, that she is NOT going to change her mind and that we ARE getting this baby. that we have no CHOICE!!! She always reaffirmed her commitment to us. She knew of all the horror stories of adoptions where birthmom's would change their mind, and that is why she wanted to go this alone with just us, and that we wouldnt be broke by the end of it all. Blake and i used an agency on our end, simply cause we had no idea how to navigate the fees for lawyers and all the paperwork...I will say that having done this adoption so privately with Misty was singley the greatest experience i have ever had. Misty called me every single doctors appt. and put me on speaker phone to hear her and the doctors discussions and for me to hear the heartbeat of Bryce', every time i got off that phone with her, i just sat in tears for how truly grateful i was for that moment.


Well Christmas rolled around, and we received a present from Misty one day. she had told me to be expecting it..but we were NOT to open it until Christmas. Much to our surprise was this beautiful "willow tree" design of a mother and father knelled together holding a newborn baby, and inside was a hand written note from Misty that read..." Mary, thank you very much for kindness and friendship. Thanking Blake and I both for taking this journey with her when we didn't have to."

And before we knew it we were in January 2011!!!!! But i will save the new year for tomorrow!

Love you all!!!!!!

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org