Saturday, April 9, 2011

HEADING FOR A BETTER LIFE


Day 4~ Year 2011' for us! Everyone is still doing great, our relationship with Misty and Bryce is growing stronger still. I have to tell you all something i am just remembering about this remarkable woman. It would be just a normal day like today, she would text me to tell me about Bryce and that he is moving alot and poking her ribs, or that he moved all night long..etc. THIS WAS EVERYDAY!!!

Ok back to the story, so i am going to move on into March....it is official! We are all nervous and ready for the big day to be here. I get a phone call from Misty as normal on her appointment day, and she tells me that the doctors want to do an amniocentesis! Their reason was that when women normally get a ultrasound at 19-20 weeks for finding out sex of the child and confirmation of due date, Misty went in around 23 weeks or so...and that is a long enough window that the beginning date and 23 week measurements and date could be construde, and that Bryce may not be as far along as we all think. So i start thinking cause i am a medical assistant as a OBGYN clinic...been in this field for a long time, and i have never heard of this before. ohh by the way, they were going to schedule the ANMIO the morning before the C-section and if lungs are fully mature then c-section the next morning! So i went into work and long story short, YES this is protocol if there is any doubt that dates can be off, plus this was an adoption, and an elective c-section. so it was a go now for the amnio on March 17th, then Bryce on March 18th!

Blake and i did NOT want Misty to do the amnio by herself, so we left Arkansas on Wed. March 16th..picked her up Thursday morning early and took her to the appt..The amnio went beautifully! then we had to hang around for another hour for observation for Misty and Bryce on the NST machine..

Misty and i were alone talking in a cozy little room, and the most peaceful breeze came in that room for the both of us. We were having one of our many last honest talks about where we are in the process. Misty was telling how she just wished with every fiber of her being that things had turned out differently for her w/the baby, the babies dad, her heartache for her son Evan, and wishing she had given him a voice in this decision.....just tears flowing down our faces together, realizing this was the greatest experience she and i had ever gone through and that we would be mothers and friends for life. I think Misty and i should write a book called "AWEKWARD MOMENTS" !! We have had our share of these. Well after what was already an exhausting morning and early afternoon, we took Misty home to rest and prepare for tomorrow, and we went to rest as well....stay tuned tomorrow morning for the greatest day and best parts of this journey yet guys! You dont want to miss it!!!!

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org