Friday, August 21, 2009

Summer 2009 Hi Lights

BNC Worship (that's Blake shoulder on the right too... ...)

Lots of Swimming
A little bit of fishng

And fun on the lake

including the fourth of July
Keith Urban Concert including a lucky backstage pass to met him!!
And then he came to see us right next to our row!!!!!!! My hand is down there close to his guitar.

More Chilling
and a little resting
and some magic springs.
Posted by at

1 comment:

Crystal M. said...

I love all your summer pics!! I do think about you all a lot, my heart, thoughts and prayers are with you!!
Hugs,
Crystal and Eva

August 25, 2009 at 6:19 PM

Post a Comment

Subscribe to: Post Comments (Atom)

Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org