Saturday, August 22, 2009

Pierce Swimming, Trip to Lucas's Marker

Sorry it's been so long since we've posted we've had a busy and mostly fun summer with lots of ups and downs still in the healing process and hoping that September and October wont come with the dreaded sledge hammer blow we are fearing on the anniversary of our precious one's departure from this life into the next.

Fortunately we are seeing God's grace and mercy move in our lives more freely these days which has been a refreshing to our spirits.

Just thought I would try and catch up with some over due pictures so here goes:

Pierce's infamous "cannond" ball

Our trip by to see Lucas's marker today... ...
I would say to "see him" but I can't seem to put in those words because most days we see him everywhere we go and because we know he is not really there at the cemetery, of course he is in heaven.
I must say that Lucas has the best looking marker on the lot, guess he stands out in a crowd even now...
Pierce loves to play with the toys on the other markers so we cleaned a few off and straightened a few things up. Guess we need to drop some off at Lucas's
Pierce can recognize letters now so he spelled out Lucas's name even though he can't read it.
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1 comment:

Catherine L said...

Hello and welcome back. I'm sitting here Sunday evening and wanted to visit you all and say hello. I'm touched how you talk of seeing Lucas's marker and not him as he's all around and I can imagine that in my mind so very clearly. With much love, ever in my thoughts, Catherine x

September 5, 2009 at 9:51 PM

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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org