Friday, May 28, 2010
Thanks for your Prayers for my Mom
Thanks for all your prayers for my mother; God is answering them and she is showing signs of improvement. Tuesday afternoon she started trying to respond and to try and talk some. Also, that evening when we got back up to the hospital there was this huge rainbow over the hospital from one side to other. She seems to slowly be coming out of it and the Doctors still aren't exactly sure why she slipped away; they thought it was encephalitis but now they aren't sure it is/was. Please continue to pray and that she will have no permeate effects from all this. On Wednesday she called me an idiot so know she is getting better, haha... ... Thanks again for all your prayers!!!
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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org
2 comments:
What an amazing site! Prayers continued for your Mother
Beautiful. God is always here and working. We are still praying.
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