Friday, February 5, 2010

Update w/pictures from last weeks Ice

Blake and I are escaping the cold this Sunday, leaving for a week in Cabo San Lucas to celebrate our 8 year anniversary. We'll have lots of pictures to put up when we get back.

We went to Cabo on our honeymoon; the ironic thing is we never realized the Lucas in Cabo until Lucas passed, weird huh?

We've been busy getting ready for our trip; Pierce will be getting spoiled at Grammy & Pop's while we are away. We signed him up for pre-K for next fall, can't believe how he is maturing. We found out he could count to ten in spanish this week, didn't even know they had taught him that in his pre-school... ...

As you can see Pierce had some fun in the ice left behind by the sleet and bit of snow we got last weekend.



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Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org