summer is officially in full swing now and starting to fly by us now. we have been at the lake the last three weekends in a row with family and friends. Pierce actually tried to water ski for the first time last weekend and we can't wait to post pictures of that (they are on another camera till then)... ...
Blake was interviewed Monday morning by our friends at B98.5 (the radio station that we've done the ACH radiothon with the last two years) We know them through our precious Lucas, who they also hold dear in their hearts. Anyway, they had a "fabulous father's" week and interviewed different fathers each morning on the show. Blake was probably the only one not a of "local celeb" status, others included Jim Bob Duggar (has a reality show/family with 18 kids), Wess Moore (local sports reporter), American Idol Kris Allen's dad Neil Allen, Jeff Kinely (pastor and author).
Ok I just figured out that you can listen to Blake's interview if you click here!!!
Also, in case you noticed I am currently restoring all my previous posts due to accidentally deleting them when I updated the blog recently. Since they are also linked to my facebook page as posts there as I add them back they look more recent there. Fortunately Blake was able to grab all the cached versions of the posts before we lost them for good. Hopefully over the next few weeks we'll have them all back on in the original order.... ...
Subscribe to:
Post Comments (Atom)
Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org
2 comments:
Weekends at the lake sound glorious! So glad you are enjoying the summer! Can't wait to see the water ski pics! My son, Sky (5) would love to try that I'm sure! We go camping for the first time next weekend...so looking forward to it!
Blake did a great job on the interview. Took a lot of courage to share what he did. Praying for you daily
Post a Comment