Wednesday, January 5, 2011

IT IS OFFICIAL!!!!!!!!!

hELLO TO ALL!

hOPE HOLIDAYS AND NEW YEARS WAS FULL OF LIFE AND MEANING IN EACH OF YOUR LIVES AND FAMILIES. HERE AT THE WEINDORF HOUSE, WE THOUGHT OF ALL OF OUR FRIENDS AND FAMILY WE HAVE HAD THE HONOR OF KNOWING THESE PAST 2 YEARS ESPECIALLY. GOD IS SO GOOD!
THE OFFICIAL NEWS IS THAT OUR ADOPTED BABY BOY (NOT SURE OF THE NAME YET) IS GOING TO BE BORN ON MARCH 17TH! THOSE OF YOU THAT KNOW THIS DATE IS MY HUBBY'S BIRTHDAY! IT IS SUCH AN HONOR FOR HIM.
MISTY THE BIRTHMOM IS HAVING A REPEAT C-SECTION AND DUE DATES B/T MARCH 16-20! SHE WAS MORE THAN GRACIOUS ENOUGH TO LET US HAVE THIS DATE FOR THE BIG DAY!
SO MY SIS IN LAW MANDI TOOK ME SHOPPING AT TARGET TO REGISTER FOR HIM AND IT WAS SO FUN AND LIBERATING!
I FEEL THE FOG LIFTING B/C OF OUR BRAND NEW LITTLE LIFE BROUGHT TO US.
PLEASE CONTINUE TO PRAY FOR MISTY AND THE PREGNANCY AND FOR US !
LOVE YOU ALL DEARLY AND EVEN THOUGH QUITE A FEW OF YOU ARE VERY FAR AWAY, NOT A DAY GOES BY WITH OUT ME REMEMBERING YOU AND PRAYING FOR FAVOR AND GRACE!!!!
TALK TO YOU VERY SOON. ALL MY LOVE,
MK

Lucas was born to us 5/10/07 and was soon diagnosed with CHARGE. CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. The letters in CHARGE stand for: Coloboma of the eye, Heart defects, Atresia of the choanae, Retardation of growth and/or development, Genital and/or urinary abnormalities, and Ear abnormalities and deafness. Lucas's anomalies included with his case of CHARGE include minor heart defects of ASD and PDA, bilateral choanal atresia repaired at four days old, undescended testes repaired at seven months old, and ear abnormalities; also he has reflux and aspirated while feeding shortly after being born and thus had a G-tube and Nissen Fundoplication at five weeks old. Additionally he has PE tubes, very low muscle tone and facial palsy on his right side. Lucas was diagnosed with Primary Pulmonary Hypertension at 12 months old. He showed us how to shine through the rain as he lost his bravely fought battle and entered into Heaven on 10/02/08. He was our miracle on earth the 507 days we spent with him. For more information, visit chargesyndrome.org